Managing Relationships While Raising a Rare Child Because rare doesn't mean alone. Raising a child with a rare disorder doesn’t just impact one person — it touches every part of your world, especially your relationships. Your partner, your other children, your extended family, your friendships, even your relationship with [...]
Watching my kids learn in two very different systems has made one thing clear… individualized learning gives children room to grow with confidence instead of fear. Finland gets this right, and I’m beginning to see how powerful that shift can be at home too.
Effective One-on-One Conversations: A Leader’s Guide Great leadership doesn’t happen in group settings alone—it happens in the moments we take to invest in others one-on-one. Whether you're developing future leaders, building trust, or improving specific skills, intentional conversations make all the difference. Here are three types of effective one-on-one [...]
My junk drawer turned out to be a total full on Monet… cute from far away, a hot mess up close. Looking inside showed me way more about my life than I expected.
I walked into the exam room thinking it would be nothing. I walked out knowing my life had changed forever. This is the start of my story with breast cancer and the intruder that forced me to fight back.
What Finding Purpose in Pain Has Taught Me Sharing these moments is one way I continue finding purpose in pain and making sense of what healing looks like. To Have Pain Is to Be Human Pain is part of the human experience. It humbles us, connects us, [...]
The Fribble Nostalgia, by the spoonful... Some memories arrive through sound or scent ... but the sweetest ones come through taste. A family trip to Disney brought us to “England” at Epcot. After enjoying our fish and chips and bangers and mash, we casually moved on to dessert. As [...]
Advice for Rare Parents From one rare parent to another. 🧠 Trust your gut. Follow your intuition. It may save your child’s life. You know your child best. They need you to advocate on their behalf—with doctors, at school, and in the community. If I had just accepted a [...]
“Be strong. You never know who you’re inspiring.” –Unknown
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