Why Do Words Matter More When You’re Writing for a Child?
A reflection on writing for children, grief, and meaning. How words help us make sense of loss, identity, and belonging when they matter most.
Trust Your Gut: A Parent’s Guide to Advocating for Children with Rare Diagnoses
Advice for Rare Parents From one rare parent to another. 🧠 Trust your gut. Follow your intuition. It may save your child’s life. You know your child best. They need you to advocate on their behalf—with doctors, at school, and in the community. If I had just accepted a [...]
