Media Kit · Press Resources

Melissa White Boyer

Author | Speaker | Advocate

Melissa White Boyer is redefining how we see ourselves, how we understand others, and who we become through experience.

Children’s Book Author  •  Rare Disease Advocate  •  Nonprofit Founder  •  Keynote Speaker

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ABOUT

Who She Is

Whether you need a quick intro or the full story, Melissa’s bio is here in three lengths — ready for show notes, press features, or any introduction that calls for it.

PRESS & MEDIA

Bios

Melissa White Boyer is an author, speaker, and advocate whose work explores how identity is shaped and redefined through real-life experience. Drawing from her background in business leadership and nonprofit advocacy, she brings a perspective grounded in both professional insight and lived experience. She is the author of I Am Rare, a children’s book centered on individuality, understanding, and belonging.

Melissa White Boyer is an author, speaker, and advocate whose work centers on how identity is formed, challenged, and redefined through life’s experiences. With a background in business leadership and as the co-founder of the Rare Genes Movement, she brings a perspective that bridges professional insight with lived experience, including raising a child with a rare genetic disorder.

Her work reflects a commitment to helping others better understand themselves and the people around them. She is the author of I Am Rare, a children’s book designed to foster individuality, empathy, and a sense of belonging in young readers.

Melissa White Boyer is an author, speaker, and advocate whose work explores how identity is shaped, challenged, and redefined through real-life experience. Her perspective is grounded in a unique combination of business leadership, nonprofit advocacy, and personal lived experience, allowing her to connect across audiences in a way that is both practical and deeply human.

As the CEO of Pearl & Hoyt, Melissa has built her career developing leaders and driving performance in competitive environments, gaining first-hand insight into resilience, discipline, and growth. She is also the co-founder of the Rare Genes Movement, a nonprofit dedicated to supporting families navigating rare genetic diagnoses through advocacy, resources, and community.

Her work as an author is shaped by her personal experience raising a child with a rare genetic disorder, an experience that has deeply influenced her perspective on identity, individuality, and how people understand one another. Through this lens, she explores not only how we see ourselves, but how we interpret and respond to differences in others.

Melissa is the author of I Am Rare, a children’s book that helps young readers embrace what makes them different while fostering empathy and understanding in those around them. The book reflects her broader mission to reshape how identity is understood—beginning with children and extending into families, schools, and communities.

Across her work in business, advocacy, and writing, Melissa continues to build a platform centered on a single idea: Identity, Redefined—challenging how we see ourselves, how we understand others, and how we grow through the experiences that shape us.

FOR HOSTS & PRODUCERS

What to Expect

Melissa speaks to six distinct topics — from rare disease parenting to children’s book authorship to nonprofit leadership. Select the one that fits your audience best, or let her range surprise you.

CONVERSATION ANGLES

Topics & Interview Questions

Writing I Am Rare — a picture book that gives children with rare genetic conditions the visibility they deserve, and what it means to tell that story.

Suggested Questions
  • What inspired you to write a children’s book, and why now?
  • What do you want a child to feel when they read I Am Rare?
  • How do you write for children in a way that’s honest without being heavy?
  • What’s been the most unexpected part of the publishing journey?

What no one tells you about navigating a rare diagnosis — the emotional weight, the advocacy required, and how to find community when the road has no map.

Suggested Questions
  • What was it like to receive a rare diagnosis for your son?
  • What do you wish someone had told you at the beginning?
  • How has the rare disease community shaped your perspective on advocacy?
  • What does Rare Genes Movement do that wasn’t available to you at first?

How Melissa built a business and a nonprofit simultaneously while parenting a medically complex child — and what she learned about resilience, priorities, and asking for help.

Suggested Questions
  • How do you balance running a business with being a caregiver?
  • What’s the biggest myth about “doing it all” that you’d like to bust?
  • What systems or mindset shifts made the biggest difference?
  • What advice do you have for moms who feel like they’re failing at everything?

The emotional reality of raising a child who needs more — more advocacy, more appointments, more explanation — and how that shapes a parent’s sense of identity and strength.

Suggested Questions
  • How has parenting a medically complex child changed you?
  • What does “resilience” actually look like on a hard day?
  • How do you talk to your other children about their sibling’s needs?
  • Where do you find hope when the path forward isn’t clear?

Co-founding the Rare Genes Movement and what it takes to build a mission-driven organization from personal experience — including the grit required to sustain it.

Suggested Questions
  • What made you decide to turn your personal journey into a nonprofit?
  • What does the Rare Genes Movement offer that families can’t find elsewhere?
  • How do you lead an organization when the mission is deeply personal?
  • What’s one thing every leader of a purpose-driven org needs to know?

Drawing on years of sales leadership, consulting, and navigating the unpredictable — Melissa speaks to what it really means to lead yourself through adversity.

Suggested Questions
  • What did a career in sales teach you about resilience?
  • What does “Made From Grit” mean to you personally?
  • How do you lead when you’re the one who needs support?
  • What’s the most important lesson life’s hard chapters have taught you?
Melissa White Boyer

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Photos & Downloads

For press and media use: High-resolution headshots, book cover images, and event photography are available upon request. Please contact Melissa’s publicist Rachel Lachney at Books Forward for approved assets. All images are provided for editorial and press purposes only.

PRESS & MEDIA

Rachel Lachney

Publicist & Digital Marketing Strategist · Books Forward