Children with Rare Conditions
Peers & Siblings
Families
Educators
Hospitals & Care Providers
Nonprofits & AdvocatesAbout The Book
A lyrical story of uniqueness and belonging.
One of the first children’s books created to represent rare kids.
Written to give them the visibility they deserve.
I Am Rare is a lyrical picture book that celebrates the beauty of being one of a kind.
Told through the voice of a child with a rare condition, it introduces readers to the science of genes—the blueprint that makes each of us unique.
Rare does not mean wrong. It means few. And while each rare condition is unique, together they represent many—a community that deserves to be seen and celebrated.
Just like superheroes whose powers come from their mutations, children with rare genes carry strength within them. It may take time to discover, but when pride takes root, their light shines with a magical glow for all to see.
This book is not only for children with rare conditions. It is for anyone who has ever felt different.
With poetic imagery of masterpieces, stars, and superheroes, I Am Rare empowers children to embrace their individuality and helps peers and siblings better understand the beauty of differences.
Complete with a glossary of child-friendly terms, I Am Rare is both educational and deeply empowering. It reminds us that when we celebrate our uniqueness, the world shines brighter.
Melissa with her son Parker, the inspiration for I Am Rare.
About The Author
Inspired by Parker’s diagnosis, Melissa writes stories that celebrate difference, build empathy & bring hope
Melissa White Boyer is a writer, entrepreneur, and advocate for families navigating rare genetic conditions. She is the co-founder of the Rare Genes Movement, a nonprofit that supports children and families in the rare disease community. Inspired by her son’s diagnosis with an ultra rare condition called Wiedemann-Steiner Syndrome, Melissa writes to educate, empower, and uplift.
About The Illustrator
🇪🇺 Illustrator | Painter | Book designer 📚 IG: @marcin_piwowarski
Marcin Piwowarski is a Polish illustrator and painter who has brought to life more than 3,000 children’s books. Known for his playful imagination, gentle humor, and distinctive watercolor-inspired style, his art has charmed young readers and families around the world. Originally from Poland, he now lives in Spain with his wife and children.
With his extensive experience and artistry, Marcin brings a richness to I Am Rare that makes the story both visually captivating and emotionally powerful — elevating it into a true work of art that children and families will treasure.
Marcin Piwowarski
