Welcome to my blog!

This is where I share stories, lessons, and the messy middle of navigating rare parenting—and life. Some posts are raw. Some are hopeful. Some are just me trying to make sense of it all in real time. I’m glad you’re here.

Learning for the Sake of Learning: What Finland Gets Right

Watching my kids learn in two very different systems has made one thing clear… individualized learning gives children room to grow with confidence instead of fear. Finland gets this right, and I’m beginning to see how powerful that shift can be at home too.

Learning for the Sake of Learning: What Finland Gets Right2026-03-07T15:07:44+00:00

Trust Your Gut: A Parent’s Guide to Advocating for Children with Rare Diagnoses

Advice for Rare Parents From one rare parent to another. 🧠 Trust your gut. Follow your intuition. It may save your child’s life. You know your child best. They need you to advocate on their behalf—with doctors, at school, and in the community. If I had just accepted a [...]

Trust Your Gut: A Parent’s Guide to Advocating for Children with Rare Diagnoses2026-03-30T22:52:03+00:00
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